Sunday, May 17, 2015

Tinged with Loss

This is, more or less, what my baby looked like when his/her heart stopped beating at 8 weeks. I didn't keep the ultrasound picture. I didn't want an image of my child dead as the one tangible memento I had, and once it became quickly clear to me what I was seeing, I stopped looking at the screen. I don't really remember what the image looked like.

Last night I went dancing. One of my husband's club friends who he hadn't seen in ages came over to meet me and then congratulated me on my baby. It was such a painful, out-the-blue reminder of my loss. After telling her I'd had a miscarriage and watching her turn first horrified then awkward, I excused myself to go cry in the bathroom. I'm still feeling pretty shitty. I just had no defenses up: I was in a place I'd never been, having a fun, escapist night out, had never met this person, didn't know my husband had told people beyond his closest friends about the pregnancy, and, bam, there it was. Right in my face.

If I were still pregnant, my baby would look something like this this week:

Some part of me feels like there's no way to get past this loss unless I get pregnant again. I am profoundly stuck--not moving through the grief. I'm struggling to celebrate being a mom in the ways I already am because I am so devastated by not being mom to the babies I lost. And I know, however much some biological, evolutionarily-driven part of me is desperate to be pregnant again, I just can't. Another loss would incapacitate me. My mental health is so fragile right now. And so I feel even more stuck. It's such a final loss--not just these babies, but a loss of so much that could have been. I have lost ever having a sibling for SparkleEyes, ever sharing those sweet hugs and kisses and messages she whispered to the babies we hoped would be her siblings; ever parenting an infant, a toddler, a preschooler, again. Ever doing those early "firsts" SparkleEyes has already moved through. Already so much of my life as a mom is over.
 
Parenting SparkleEyes right now is hard much of the time as we're dealing with depression and anxiety in her. And making it through that truly awful time in Dec. and Jan. when my precious baby lost her faith in the world, her faith in goodness, in things turning out okay--that took everything out of me. I'm barely managing to show up a lot of days now. It took everything for me to show up as she needed me to, over and over again, often for hours and hours as she was in deep psychic pain. It took so much for me to be present for her even as I was finding myself profoundly traumatized by the suicidal statements she was making, by the despair and grief and agony I saw overtaking her that I had prayed and prayed she would always be spared.
 
I've lost so much as a mom in these last few months. And I wonder if I will ever have a point as a parent again like I did when my little girl was tiny and discovering the world and full of joy and innocence and belief in the basic goodness of things, in things' tendency to turn out okay. I was so looking forward to doing those early years of joy and discovery and innocence again with a new baby, of watching SparkleEyes experience them through her brother or sister. 
 
I am grieving not only losing my babies, but also SparkleEyes' loss of joy and hope and innocence. I am grieving losing those mommy-moments, those years of parenting that I will never do again. I hope and believe that SparkleEyes will recover, as we're starting to see, but it feels like a shift has happened, and it will never be quite the same again, for her or for me. There is some part of my mommy-identity I think I may have lost forever just as I lost my babies and the possibility of another pregnancy, of holding another newborn I've birthed, of watching first steps, hearing first words, introducing a tiny little soul to a beautiful world and cultivating deep wonder and joy in that little soul.
 
Some part of me also knows I am missing out on so much of what is around me right now, in my child, in my capacity to parent, in the beauty of the world bursting into Spring...but I am so profoundly exhausted, and some days everything is tinged with loss, it is so hard to be present.

 



Friday, May 15, 2015

Waking Up

Image from The Sleeper and the Spindle by Neil Gamon
 
 
I've been nervous to say anything for fear that it will slip away, but I have been happy, calm, even...feeling soft and smooth...for three days now. I'm pretty sure the new meds have kicked in (in less than a week!). I haven't felt this good in probably a couple of years. And I am profoundly grateful for the miracle of medicine. The experience of having meds start to work is like a magical kiss breaking a curse. It's good to be waking up. 

Wednesday, May 13, 2015

Surrender

                                                    Conception Column, by Paige Bradley

It's been at least 7 years since I was last here...7 years since I last felt pulled under, lost in a labyrinthine inner world where only nightmares and fog get to dwell. I'd forgotten how much my intense depressions feel surreal, like getting lost in a twisted fairy-tale--Brothers Grimm but more gruesome because the heroes never show up and it's all thorny forests and vines that grow up over night and cut you off from everything; it's all spells that make you sleep in frozen animation, or lock you in a glass coffin somewhere in the twilight between life and death, sleep and waking. I can see the world outside me. I know that somewhere emotions like joy and happiness are still there, but I can't break through to them. I can almost see out, but when I try to get to what I see, I discover the path only leads around and back on itself. I can sense Life going on just past those glassy coffin walls, but I can't stir enough from this poisoned sleep to break back into the world of the fully living.

I used to feel this way at least once a year, often more. Sometimes it would last for a year at a time, with little bits of reprieve here and there, as it did during my first years of college and later when I was pregnant. And I got really good at fighting, pushing through. I could keep going and going despite being depressed, even despite being suicidally depressed: getting 4.0s, performing well at work, keeping track of everything I ate to make sure my unborn baby was getting all the nutrients she needed even though I had no appetite at all during my pregnancy, parenting a newborn and then an infant well and playing, smiling, cuddling, bonding, sleep training, never losing my temper at her despite being suicidally depressed. Maybe it was so familiar I had adapted. Maybe it was a way to cope with the constant release of cortisol. I don't know. But I know I could fight. It didn't make the depression better, or make it go away, but it was at least something to do to help me escape while it lasted.

Now I'm back. The emotions, the sensations, it's all so familiar. It's all the same. I accepted a few years ago that I'd never be able to go off of my anti-depressant if I wanted to live depression and anxiety-free. I knew the research: the likelihood of being able to go drug-free without a major relapse if you have major depression and have had two or more episodes of major depression is infinitesimal. Even with therapy and nutrition and exercise, and blahbityyblahblahblah--all those  things I'd done for years that made almost no dent in the depression. Sure, they gave me wonderful coping skills, ways to weather the waves of depression, and important cognitive skills that are probably the only reason I was able to endure such an intense bout of PPD and bond immediately and intensely with my baby and parent quite well during the months before I met lovely antidepressants. But none of those things did a damn thing to help me feel any better.

I remember, literally, the moment my zoloft kicked in. It was 10 days after I started. I was sitting on the floor (zoloft made me really dizzy and nauseous when I first started, so I spent a lot of time sitting on the floor while I was ramping up) and suddenly a wave of well-being just washed over me. I felt peaceful, whole, intact in a way I never had in my entire life. I laid down in my husband's lap, totally overwhelmed with gratitude and joy, and thought "Wow! Do other people get to feel this way all the time? Or at least regularly???? I am so profoundly jealous." I have to imagine it's like seeing for the first time--maybe someone has tried to describe what something looks like but you have no experience at all to connect with their words, so no way at all, really, to understand. I had no frame of reference at all for the emotions and sensations I was feeling. I'd had moments of happiness, joy, intense delight, and love. But I'd never felt intact and whole and peaceful like I did in that moment. That became my new normal.

And then zoloft quit working a couple of years ago and my anxiety sky-rocketted, though it continued to keep the depression at bay. We tried prozac and then finally cymbalta, and, again, I got to live my new normal, mostly free from anxiety, and definitely from intense depression until I ended up hypomanic on the meds and so had to go off of them. So now here I am again, back in an inner world I didn't think I'd have to visit quite like this ever again, feeling lost and cut off from huge parts of myself, from the world outside my depression,

Maybe it's the the trauma therapy I've done, or living for the last 7 years free from major bouts of depression, but whatever it is, I don't want to fight. I don't want to hold it together and get through. I don't want to rally. And so I'm trying something new. I'm trying to just be here, surrender to the crap, to the fact that this is where I am right now. This is my normal right now. I'm trying for acceptance while I wait for the mood stabilizers I've been put on to, hopefully, kick in.

Instead of fighting I'm free-falling and believing that Something bigger than myself will catch and hold me, sustain me and Breathe me back into full being.



Tuesday, May 12, 2015

Sustain Us With Your Holy Breath

I have been doing morning prayer from the Book of Common Prayer every morning for the last few months. In some ways it holds me together a little right now as it feels like my psyche and inner solidity is coming apart at the seams.

In the last few weeks I've been taken off my antidepressant due to a hypomanic episode, either the result of a previously undiagnosed bipolar illness characterized by intense bouts of depression and no mania--only hypomania--or the result of too high a dose of my antidepressant combining with postpartum hormones and triggering hypomania. Either way, I had to go off my meds and am now on a mood stabilizer that hasn't started to lift the depression at all yet. I am experiencing depression that is as intense as I've ever had. Fortunately, it comes in waves. After it washes over me until I can barely breath, it then washes back and I get some time before it rushes back over me again. In the moments when I am under, I want to stop existing, figure out a way to float away, out of my body, emotions, and mind. Even my body aches when I am under.

I think this is why the line "Sustain us with your Holy Spirit" in one of this morning's prayers arrested my attention. I remembered that biblically the words for Spirit and Breath are often used interchangeably in both the New Testament and the Hebrew Bible. I remembered the image of God breathing life into Adam and Eve at creation--God's Spirit and Breath animating these creatures made of dust and earth, of clay and mud, that holy crumbly stuff--the firmament, holy and made by God. Matter and Spirit--Earth and Breath: Earth of God, Breath of God, made human. God's Spirit/Breath animate, create, heal, connect, lead to prophesies, creation out of chaos. Gods' Breath connects holy and God-made skin, bone, and sinew with Spirit. Spirit is that life that saturates the earthly, the here-and-now of matter, but goes beyond as well, to what can be, what will be--Life Eternal, that kingdom of God. Flesh in the here-and-now moves past itself to the What-Will-Be through Spirit.

Sustain me, Breath of God....it's hard to breathe, it's hard to want to breathe when I am under, when it feels like I am more fragment than whole, more coming-apart than woven together, like a garment being torn violently right along a seam so it tears apart effortlessly, becoming ragged and ripped so easily and naturally it looks like that's how it was designed to be.

But I believe that my own ragged breaths also somehow ride on the wind of God's own Breath in me, around me, sustaining me here, right now, but also connecting me in the very core of my being to Life Eternal, What Can Be, What Will Be. Breathe in me, Breath of God...

Friday, May 8, 2015

On being an empty tomb


Picture found here

 
This particular passage through grief has been a strange journey for me, quite unlike any I've traveled before.

Usually when I am aching I want company. I want to talk. I want to be surrounded.
 
This time I have wanted and needed space and silence.

When I came home after my ultrasound, I sobbed and laid in bed, still and alone. After a few hours I texted my best friends to let them know. And then I turned off my phone. I didn't want to see their responses. 

When I began to crash, finally coming off my hypomania (oh, glorious, expansive, joyful hypomania) I didn't want anyone with me. The night it started, I didn't want anyone there. I began with a  descent into scary drug reactions/interactions as docs tried to bring the hypomania down to make sure it didn't end up in full-blown mania. I felt emotions I'd never felt before, had physical reactions from dizziness to tremors to near out-of-body experiences, had mood swings shifting from terror to rage to despair all within about an hour. I didn't wake my husband. I didn't call anyone. Well, I did call my therapist, who missed the call, and then the hospital. No one else. Instead, I took my sleep meds and curled up on the floor desperate for something solid underneath me. I went to sleep. The only person I wanted with me was my daddy. I almost called him. But I most definitely didn't want my mom, and a midnight call to daddy would have meant mom too. So I curled up on the floor until the sleep meds took over and then crawled through the soothing, quiet dark into my bed. The next morning I had my husband take me to see my therapist and psychiatrist (the weird reaction I had to the meds meant I could barely walk straight, much less drive anywhere). 

I txted my friends the next day, saying "I'm crashing. I want you to know, but I don't want to talk about it."

The same has been true for nearly every loss I've gone through this year.
 
On my birthday, after the second miscarriage, after it became clear my little girl was struggling with something far greater than I had ever wanted her to feel, I laid in bed all day and wept. I wanted to be alone and silent. 

My dear, sweet husband came in as I cried. He is, to this day, the only person who can "read" me almost immediately, almost 100% accurately, and the only person who's ever been able to "read" me before I could read him. He came in and saw me sobbing. He didn't say a word. Didn't try to make it better. He sat down next to me and rubbed my back in silence as I cried for an hour and a half. I moved through a lot in that time. I never told him about it. He never asked.  

Usually words comfort me. Usually they are my love language. But this time they mostly feel intrusive. And almost dishonest. At least unable to capture what's going on. 

Maybe it's because I've never had an experience that is so totally insular and personal.  

Each of my babies--I was the only one who ever knew them in any tangible way. In both cases I knew I was pregnant before the test told me because I have such specific, distinct, and predictable pregnancy symptoms. Every second of my pregnancies I was aware of these little lives with me as my hormones shifted, as my whole body reacted to their presence.

With my first baby, I knew I had lost her well before the doctors could confirm, again because my body responded to that loss immediately and I could feel it, could feel and  and see my pregnancy slipping away.

With the second, the morning of the ultrasound, I woke up to a body that was already beginning to respond to my baby's death. The pregnancy symptoms had shifted ever so slightly, and I thought, "Oh, God, please, not again." 

I'm the only one who ever knew those babies as anything but an abstraction as I carried them, felt each little growth in them shift my body, my emotions, my physical and emotional sensations. They altered me, changed and grew me as I did them. 

And when they died, and especially once they finally each left my body completely, I was the only one who experienced that loss as my body changed from moment to moment as they moved out of me, born in such a broken, bloody, incomplete, and torn-to-pieces way. The less pregnant my body felt and became, the larger their absence grew for me. Not being able to escape my body and how not-pregnant it now felt and was, I also could never really be away from the awareness of their not-being anymore, and especially of their not-being-with-me.  

They'd never been with anyone else. No one else had touched them, felt them, fed and nourished and helped them grow. There is no one else to grieve their loss as I always will. No one else knew them, carried them, felt them, was a part of them. And so, in a very real way, there is no one to share this loss with. No one can carry it with me because I was the only one to ever carry them. 

And it's not quite about people "not understanding." Certainly there's some of that. I'm not close to anyone who's miscarried before. I know lots of people, but no one near and dear. Those who have miscarried or struggled with infertility have shared their stories with me in the last few months. But more often than not, hearing other people's reactions to my miscarriages is more of a burden then a relief, whether they've had a miscarriage and have some sense of what it's like, or are simply seeking something to say. It's a burden because I then have the weight of their emotions and reactions and fears and understandings of what a miscarriage is to hold on to as well. And those reactions don't match mine, ever, no matter how close they get.  

But it's not really that either. It's that I've had two babies no one else has ever met or known. I have those babies to grieve. I can't go to a funeral and hear what others remember, others experienced. I didn't get to share these lives with anyone else, and now there is no one to share their deaths with either.

And so I don't want words and company, I guess. Any maybe some of that is unhealthy. But I guess it's just impossible to fully grieve with those who never knew my babies. And that's everyone. So I keep wanting to have space to be alone, to be with the parts of me that knew, and know, and still carry those lives, invisible to the rest of the world. I want to be with people who knew and loved my babies. And that is me. And only me.

It's not that I don't want community as I struggle. I do. It's not that I don't want to be loved or known in it. I do. But I almost never want to talk about the struggle or the pain. It only seems to make it worse to attempt to share it.

Interestingly, the only people who have seen or heard the depths of my pain around this have been men: my husband, my boss, my bishop, my dad. I'm sure some of it is my mommy-issues creeping up, but I think the bigger reason is that in each case, none of those men ever attempt to relate to my pain, to "get it." They know they can't possibly relate, incapable as they are of ever being pregnant, or giving birth, or giving birth to a not-yet-formed child. So they simply reflect back to me the enormity of what I'm feeling, and in their faces, their embraces, their words, their total lack of understanding, I see my own helplessness as they say "I can't even imagine." They look at me when I am in pain and I see their pain and their helplessness to make it better. Or sometimes they simply grab me and silently hold me as I weep, or, if they're not intimate enough with me to do that, I see their bodies shift toward me and open up as I cry and, in so doing, silently witness to my loss, to the fact that there is nothing anyone can do, can say to make it less heavy, less of a burden. But they let me know they see it, and as they move toward me silently in it, with no pretense that they can comfort or understand or get it, I feel honored on my journey. Their silence and caring cluelessness has been a gift.

And right now, between these losses, and seeing my once-full-of-joy-and-life little girl become so depressed and anxious that she wanted to die even though I was giving everything I had to give to help her feel ok and safe and nurtured and loved, I feel so alienated from my own ability to hold life and nurture life that maybe it's a little hard to share this with women with all that women represent in that archetypal way: pregnancy, birth-giving, life-bearing.

 Image found here

When I went on retreat, I spent a lot of time with the image of the Pieta. Mary has been a pretty central part of my spirituality for years, but always as the Mother, or the Pregnant One, or the Theotokos—God-bearer. This time I was relating to her as the mother holding her dead child in her arms, cradling him, broken and battered as he was, being for him a final resting place before he moved on to the next part of his journey, before she had to let go and put him in that tomb.

In a way, I even miss the two weeks I spent carrying my dead child with me. It was awful, feeling pregnant—though less so with each passing day—while also knowing my baby was already gone and I could miscarry at any moment. My body could do nothing to help this little one grow, heal, bring that heartbeat back. I couldn’t feed and nurture her (or him). I could do nothing. But at least I was with my baby. I was holding her until was time for her to really go. And when the miscarriage never came and I had to have another ultrasound to confirm and then had to induce so I didn’t end up with an infection, that was far worse.

That final loss was like being an empty tomb, but not one that had experienced resurrection and so could be the ultimate symbol of life. Instead it was like becoming a tomb that had just lost its last purpose for being: holding and honoring the life that once was, being with it even in death.

That second miscarriage was a terrible journey from being life-giver and holder, to becoming tomb, to finally becoming an empty tomb, one that no longer could even hold the life that once was...

Thursday, May 7, 2015

Back from The Silence

It's been three years since I've posted here...I guess three years since I've needed this space, a space I come to when my inner world, which can hold so much, go so deep, expand to hold even incredible trauma and despair, is finally too full. I am finally too full again.

A month away from ordination.

Five months since losing an unexpected, but suddenly deeply welcome, pregnancy to miscarriage.

Four months since getting pregnant again, this time on purpose.

Four months since holding my 8-year-old girl together as she experienced the depths of a major depressive episode and massive anxiety, terrible enough for her to beg me to give her permission to kill herself.

Two months since seeing our baby on an ultrasound, seeing the little outlines of that life. And seeing that s/he had no heart-beat. My baby had died that day, maybe the day before, my doctor said, with tears in her eyes.

One and a half-months since the miscarriage finally started and my baby bled right out of me.

A few weeks since a new mental health diagnosis for me: bipolar NOS (not otherwise specified--characterized by extreme depression and hypomanic episodes--no full mania). Or maybe just a combo of too high a dose of anti-depressants + postpartum hormones triggering a hypomanic episode. But more likely a brand new diagnosis.

Two days since beginning more therapy--this time EMDR--to deal with the trauma of it all.

First day on new meds to go with new diagnosis.

All while doing ministry and being a spiritual space, a calm non-anxious expansive place to help hold the world together for people in their own despair, facing their own trauma, needing to connect to a God of Love, the God who is Beyond all of this, and yet somehow in it with us.

I am full and exhausted.

I'm not sure how I am not always depressed beyond words, beyond speaking right now. I have moments like that. Moments that are so painful they are beyond words. Moments when I cannot even reach out. I just have to crawl deep inside and be alone and silent because there is nothing else to do. There is no way to really share this pain, these experiences that are beyond my ability to explain. Moments like that have hit hard these last few days.

And so I am here again. To write. To empty all that is inside and that I can't hold on to anymore.

I am here.

Tuesday, March 20, 2012

A meditation on the darkness

I am helping to plan the Easter Vigil for my church this year. It is traditionally called a service of light, but we are seeking to honor the dark as well this year. Too often we seek to rush right from Good Friday to resurrection, from death to life, winter to spring. But a vigil calls us to keep watch, to stay awake, to see in the dark. We are so afraid of the dark, afraid that it only has death and destruction, danger, to offer. But in the darkness of the womb life stirs, grows, gently unfolds. In the dark of night African slaves were able to slip away unseen, find their way to freedom as they traveled by night on the underground railroad. And our Christian tradition says that in the darkness of the tomb on Easter Saturday stirred life once again.

Too often we seek to sleep through the night. When we are confronted with the dark, we seek to drown it out with light, not gentle light that will dance and embrace and create a lovely interplay with the dark around it allowing us to see in new ways, but garish electric lights that allow us to hide from the dark, from shadow.

What would happen if we kept vigil? In the midst of dark if we stayed awake, if we watched? Would we discover life and liberation in ourselves, in our world, in those corners of mystery, of pain, of suffering, of grief, of silence, even of death?

Our tradition--our Christian tradition--is full of tension, tension we often try not to see. Our holy Scriptures hold stories that make God out to be a God of violence, one who murders little Egyptian boys even as this God liberates Jewish slaves, one who orders genocide in order to create a Promise Land. As much as there are stories of liberation and healing and wholeness in our tradition, there are also terrible stories, stories that seem to put a God who we believe stands on the side of life and liberation in league with death and oppression and violence. And there are some spaces that are simply violent and evil, and no amount of wrestling, no amount of awareness, no watchfulness will help us to discover that in the midst of what seems a threatening darkness is actually revolutionary transforming life. And sometimes we must just name the violence. Sometimes our vigil means staring into the dark and telling the truth about what we see there--the violence, the hate, the abuse that is held in our tradition, in our stories about God, in our own hearts and world. But sometimes as we keep vigil we discover that there is immense life and liberation in the dark, in the silence, in the night, in the mystery.

At our vigil this year we will be staying awake in the dark, in that in-between space, that darkest hour before the dawn, in that space between Good Friday and Easter. Here we will keep vigil as we move from Winter to Spring, from the cross to the tomb to resurrection, as we wrestle with our own stories, stories of violence, of pain, of destruction, of hope, of liberation, of new life. We will keep vigil as we wait and hope and work for new life, healing, and liberation in this in-between space that is our world, full of death and new birth, terror and hope, Winter and Spring, light and dark, holy, holy dark and the fire that keeps us warm and helps us to see the most sacred contours of night, of dark, of shadow, of mystery, of silence, of the not-yets that whisper to us that dawn, birth, and resurrection are unfolding even now.

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